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Wednesday, December 19, 2012

Toilet Hygiene and the Use of Bidets for ppl w/ ALS/MND

ALS is a debilitating disease that can cause weakness throughout the body, impairing function with all day to day tasks.  In my seven years of working at the ALS clinic as an Occupational Therapist, most people with ALS (PALS) are more than willing to discuss difficulties they are having with dressing, walking, opening containers, opening doors, hand writing and a host of other daily activities. 

The activity of going to the bathroom is rarely discussed, as most of us were taught from a young age that this is a basic human function that should be kept private.  PALS rarely (unless prompted) discuss activities involved with going to the bathroom especially in terms of being able to manage their clothing and being able to perform toileting hygiene and cleaning.   In most cases this is probably an accurate and acceptable social norm; however what do you do if your hand and arm strength is greatly diminished?  An activity that was once a basic human function performed on a daily basis can turn into an extremely difficult task.  The consequences of this task not being performed effectively and correctly can lead to embarrassment and needlessly exaggerate functional deficits associated with ALS.  Even if a PALS has help with toileting hygiene, he or she may feel uncomfortable with this loss of independence. 

The bidet is a good solution for those PALS with loss of hand and arm function, who need assistance with toilet hygiene.  Bidets come in many different forms and at many different price points.  I have not heard any patient regret their decision to use a bidet at home to increase independence with toileting.    Some patients have been extremely happy with regaining a level of independence with such a private activity of daily living. 

Most bidets are sold as part of a toilet seat.  This bidet/toilet seat will be installed in place of your current toilet seat.  Bidets usually cannot be used in conjunction with a 3 in 1 commode or raised toilet seat.  If you are having difficulty standing up from the toilet, you may want to install a new ADA compliant toilet.  The ADA (Americans with Disability Act) height recommendation for toilets is 17 to 19 inches (floor to seat).  Depending on your ability to use your arms, you may also want to install a grab bar along one or both sides of the toilet at 33 to 36 inches high.  This can help most PALS with sit to stand toilet transfers and prolong independence with toileting.  Doing this can be helpful even if you need assistance from a caregiver with getting onto and up from a toilet. 

 

Most of the bidets I recommend do not come from a medical supply store and are not necessarily marketed exclusively to people who have disabilities.  For instance, the brand Toto is a Japanese manufacturer of toilets that are marketed as luxury items.  I believe that products made by these types of companies have a higher level of quality and are actually less expensive than products exclusively made for people with disabilities.

Bidets also have different functions that can be beneficial.    One of the major functions I would look for when purchasing a bidet is hands free use.  If you already have limited hand function, you don’t want to have to operate buttons or a remote control to use your bidet.  This defeats the purpose of hands free toilet hygiene.  There are many bidet options that come with sensors that activate the bidet system through shifting your weight on the toilet seat.  This ensures hands free hygiene and makes it so the bidet system cannot accidently be activated otherwise. 

Another function I would look for when purchasing a bidet is a drying mechanism that is also operated in a hands free function.  A bidet uses sprayed water to clean a person so you are going to need to be dried after using it.  Many bidets come with a blow dryer function to meet this need. 

There are other functions that you may or may not find helpful.  There are automatic toilet lid openers, self cleaning nozzles, heated seats, and massage functions.  Outside of the automatic seat, the other functions may or may not be needed. 

After reading this article, if you have any questions you can contact me at scott.rushanan@uphs.upenn.edu  I hope you found this article helpful.  I’ve attached some links to company websites that sell types of bidet systems discussed in this article. 

 http://www.totousa.com/Washlet/WashletS400.aspx



Authors: Scott Rushanan, MS, OTR/L and Michelle Lewis, DPT, PT
 

19 comments:

  1. Thank you for the reference, and please let me know what I personally can do to help those suffering from ALS, particularly those with limited financial means.

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    1. My beautiful sister was diagnosed with ALS in July. She has been a PE Teacher, Art Teacher, later got a Guidance Counselor with the public schools, cheerleader coach and adviser to the annual staff. She was getting ready to retire with a strong savings but the ALS needs are wiping out everything. She could very much benefit from some assistance since she lives alone and the rest of us are in NC. Any help would be so appreciated. Thank you, Harriet Saunby

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  2. These tools will help people with disabilities cope with their every day needs and the like. Thanks for sharing your ideas. Keep it up!

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  3. This bidet/toilet seat will be installed in place of your current toilet ... bidettoilet.blogspot.com

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  4. This bidet/toilet seat will be installed in place of your current toilet ... abidetseat.blogspot.com

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  5. Thank you for sharing your thoughts and recommendations. These tools will give people with ALS and others less burden when having their private moments in their restrooms.

    --------------------
    Leaders of Hygiene

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  6. Thanks for sharing this post about Use of Bidets. This is very helpful to guide others easily. Bidet Toilet Seat

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    ReplyDelete
    Replies
    1. Does your African Doctor have medicine that will erase bullshit health cures from the internet?

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  8. Mr George All thanks God for using this great man to help me cure the ALS disease which my wife was diagnosed with ALS disease,so when i contact this great man for help,he did some prayer for my wife and me and prepared some herbal herpes which i give my wife and now my wife is cured of the disease and now i am so happy with my wife and all thanks to him The Great Uzaba he can cure all kinds of disease like ALS, MND, Epilepsy, Leukemia, Asthma, Cancer, Gonorrhea etc,his herbal cure can cure all kinds of disease once you have faith and believe in him i assure you that your problem will be solve,Contact Temple:spiritualuzabatemple@gmail.com Call Temple:+2349031695243 for help and will help you ok

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  10. Hey, very nice site. I came across this on Google, and I am stoked that I did. I will definitely be coming back here more often. Wish I could add to the conversation and bring a bit more to the table, but am just taking in as much info as I can at the moment. Thanks for sharing.
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    ReplyDelete
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  15. Clean as you go and train your children to do the same as well. Discipline can make it a lot easier. Put things in their proper places and throw away garbage immediately. A day to day simple cleaning can save you from a weekend of endless maintenance.cleaning supplies

    ReplyDelete

  16. thanks to Dr ebhota, who cured me of fallopian tube blockage and fibroid. i married for over eight years wthout a child of my own. because of the problem with my fallopian tube and fibroid, until i came in contact with Dr ebhota's testimony and recommendations online, on how he has cured and healed so many people of the same illment, and i decided to contact him, and he administered his medication on me, and i became pregnant in two months. increase you want to reach him for a similar problem, you can reach him on +2347086564868 or email him,drebhota123456@gmail.com

    ReplyDelete
  17. I was diagnosed of ALS disease (Lou Gehrig’s disease) in 2014 and I have tried all I can to get cured but all to no avail, my life was gradually coming to an end, until i saw a post in a health forum about a herbal doctor from Africa who prepares herbal cure to cure HERPES/ and all kind of diseases including ALS, MND, Epilepsy, Leukemia, Asthma, Cancer, Gonorrhea etc, at first i doubted if it was real but decided to give it a try, when i contact this herbal doctor via his email,(dr.sandyspelltemple@gmail.com) he prepared an ALS herbal portion and sent it to me via courier service, when i received this herbal portion, he gave me step by step instructions on how to apply it, when i applied it as instructed, i was cured of this deadly disease within 16 days, I could not walk or talk understandably before but after i took the herbal cure as he instructed i regained strength in my bones and i could talk properly unlike before, I am now free from the deadly disease and Well my brother is also suffering from Blood Cancer for past 6 years and it saddens me seeing him in such agony.People are looking and reseraching to find cure for Blood Cancer but the cure is very evident, its herbal mixture suggested by Dr.Sandy he did so many test and therapies and finally came up with the conclusion that herbal mixture is the cure for Herpes as well as Blood cancer and my brother cure this Blood Cancer and it was the Dr.Sandy who did it for me and my brother, all thanks to Dr.Sandy. and if your cure for your illness pls Contact this great herbal doctor via his email. dr.sandyspelltemple@gmail.com dr.sandyspelltemple@hotmail.com dr.sandyspelltemple@yahoo.com or call Whats App Number +2349031726182 https://www.facebook.com/Drsandy-SPELL-HOME-2-226270587825982/
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